Why Sharing Your Health Data Could Affect Your Family-Building Journey – And What You Can Do About It

Did you ever think your health data might impact more than just your medical care?

If you’re on a journey to build a family — whether naturally, through assisted reproductive technologies, or using home insemination kits — the privacy and security of your personal health information matters more than ever. And here’s a recent development that’s shaking things up.

Just last week, California led a coalition of 20 states in suing the Trump administration to block the sharing of Medicaid health data with the Department of Homeland Security (DHS). Why? Because DHS was using that sensitive data for immigration enforcement — a move many see as a direct threat to people’s privacy and well-being. (You can read the full story on NPR here).

This lawsuit has sparked a wave of conversations about data privacy in healthcare — and it’s particularly relevant for those of us navigating the complex, emotional terrain of fertility and family building.

Why should you care about health data sharing in family building?

Because when your medical records or fertility treatments are shared without your informed consent, it can lead to unintended consequences — from discrimination to legal troubles — especially for immigrants, LGBTQ+ individuals, and anyone using alternative methods like at-home insemination.

Think about it: Trying to conceive isn’t just a medical issue. It’s deeply personal, often filled with hope, anxiety, and sometimes heartbreak. The last thing you want is to worry about who might have access to your fertility treatments or reproductive health information.

This is where technology and companies like MakeAMom come in.

MakeAMom specializes in at-home insemination kits, offering a discreet, empowering alternative to in-clinic fertility treatments. Their kits — including CryoBaby for frozen sperm, Impregnator for low motility, and BabyMaker for those with sensitivities like vaginismus — offer reusable, cost-effective options that put control back in your hands.

Because, when you’re using a system like MakeAMom’s, you’re not just embracing modern fertility tech — you’re also sidestepping the risk of excessive data sharing that traditional medical settings might expose you to. Plus, their shipments are plain-packaged with no identifying information, protecting your privacy even further.

Now, I know what you’re thinking: “Is at-home insemination effective?” According to MakeAMom, their average success rate is an impressive 67%, showing that you don’t need to sacrifice results for privacy and convenience.

So, what can you do right now to protect your health data while navigating your fertility journey?

  • Be informed: Stay updated on laws and lawsuits about health data privacy — it affects you more than you think.
  • Ask questions: Whether you’re visiting a doctor or ordering a home insemination kit, inquire how your data is stored, shared, and protected.
  • Consider alternatives: At-home fertility solutions like those from MakeAMom offer privacy, affordability, and convenience.
  • Advocate: Support organizations and policies that protect patient data and reproductive rights.

The intersection of technology, privacy, and family building is evolving rapidly.

And while the details of lawsuits and policies might seem overwhelming, remember that there are resources and innovations designed to help you take charge.

Whether you’re just beginning to explore your options or are deep into your fertility journey, your choices around technology and privacy matter. They impact not just your success in building a family — but your peace of mind along the way.

What steps are you taking to protect your health data? Have you considered at-home insemination as a discreet alternative? Let’s start a conversation below — your story might just empower someone else to take control of their family-building journey.

Privacy isn’t just a policy — it’s part of how we care for ourselves and our future families.

Author

Gabriel Martinez

Hello! I'm Gabriel, a queer Latino dad, educator, and lifelong learner fascinated by how technology can open new possibilities for modern families. From IVF to adoption, I’ve experienced firsthand the challenges and joys of creating a family in the digital age. My goal is to offer practical advice and heartfelt stories to empower all aspiring parents, no matter their background.